Saving Lives and Raising Awareness About Sarcoidosis

It’s a disease you don’t often hear or read about in the media, but doctors believe there are countless Americans living with Sarcoidosis.

Sarcoidosis is a systemic disease that can affect multiple organs, create a variety of symptoms, occur chronically and cause blindness or even death. While some treatments exist, there is currently no cure.

Saturday, October 30 was declared “Sarcoidosis Day” in Houston by Mayor Annise Parker.  Several Houstonians with the disease, along with their family and friends, gathered to participate in the 6th annual Sarcoidosis Walk for a Cause.

I had the honor of serving as emcee during the pre-walk event.

It was sponsored by the Janine Sarcoidosis Outreach Foundation and it’s founder, Emma Carroll.  Ms. Emma started the foundation in memory of  her daughter who died from complications of  sarcoidosis, leaving behind two young children.  http://www.jsof.org/

 

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5 Responses

  1. […] This post was mentioned on Twitter by You Post Houston, You Post. You Post said: Saving Lives and Raising Awareness About Sarcoidosis http://ow.ly/19JaWN […]

  2. Sarcoidosis sufferers and advocates like myself can’t express our appreciation enough for this coverage about our struggle! All though strides are slowly being made, it’s still not enough and we have a very long way to go to achieve the support and recognition this disease so desparately requires!! We hope that with each spot of exposure about Sarcoidosis more people will begin speaking out about this disease and the powers that be in governement, along with healthcare providers will begin to take this disease more seriously so that we can get the help that we need medically and financially!

  3. Awesome!!! This is highly appreciated!! Every step made whether small or medium or big just makes my day!! We desperately need all the help we can get. Sarcoidosis has changed so many of our lives that just to hear or see the word sarcoidosis (other than coming from us sufferers) makes a big difference!! There is still NO cure for sarcoidosis and yet we believe that one day we will have the pleasure of finding one. Many lives have been lost and many lives have been changed. So again thanks so much for this!!

  4. This is excellent. “Never doubt that a small group of thoughtful, committed citizens can change the world. Indeed it is the only thing that ever has.” Margaret Mead

    Awareness is raising everywhere!!! Keep persisting.

  5. I am pleased to hear all of the wonderful success of the walk and all the information on sarcoid! I was planning to attend the walk, but I ended up having surgery! I was looking forward to the walk. I’m in such a small town and I have No support group or even anyone who can understand what I go through, with the exception of family and great friends!!!!!! I’m proud of all who participated and those who walked for the ones who were unable! God Bless to all!!!

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